GH Scientific Study Group

Experts identified by the GloBE-Reg Steering Committee were invited to form a GH Scientific Study Group (SSG) in early 2022. The SSG has several tasks including advising on the data fields in the GH module, testing and using the GloBE-Reg platform and developing studies that can be performed in the short-term as well as over the longer term. Importantly, the GH SSG has embarked on the development of a recommendation for a core dataset that should be collected in all children receiving rhGH therapy. The SSG also has representation from patient associations as well as experts from the GH Research Society.

Members of the GH SSG:

NameAffiliationPlace
Faisal AhmedProject Lead, Office for Rare ConditionsGlasgow, UK
Evangelia CharmandariEndo-ERNAthens, Greece
Ching ChenSenior Fellow, Office for Rare ConditionsGlasgow, UK
Jin-Ho ChoiAPPESSeoul, South Korea
Chunxiu Gong / Xinyu DouCSPEBeijing, China
Jamie HarveyMAGIC FoundationUSA
Andrew HoffmanGRSStanford, USA
Reiko HorikawaJSPETokyo, Japan
Gudmundur JohannssonEndo-ERN/GRSGothenburg, Sweden
Alexander JorgeSLEPSao Paulo, Brazil
Bradley Miller*PESMinneapolis, USA
Lars Sävendahl*ESPEStockholm, Sweden
Rasha Hamza TarifASPEDCairo, Egypt
TBCAPEGTBC
Xanthippi TseretopoulouTraining Fellow, Office for Rare ConditionsGlasgow, UK
Diana Vitali*Patient RepresentativeSOD Italia and Endo-ERN
* Current representatives of the GH SSG on the GH Scientific Studies Committee

Supported by the Project Management Group

Members of the GH SSG can access a private area here.