To add patients to the Registry, informed consent is required.
The table below contains information sheets and consent forms as approved by National Ethics Service and Information Governance authorities in the UK in 2022.
We will add information sheets from other countries / in other languages
| Language | Country | City | Centre | Date of Revision (Translation) | PIS Adult | PIS Parent | PIS Child | IC Form |
| English | UK | Glasgow | Royal Hospital for Children | 07/07/22 |  | | | |
| Chinese (simplified) | China | Beijing | Beijing Children’s Hospital | 07/07/22 (05/01/23) | | | | |
globe-reg.net 