Since the launch of the project and the registry going live in Q4, 2022, the number of visits to the website has seen a steady increase. Looking forward to the February drop-in session!
The registry went live in October 2022 and is ready for use. The Growth Hormone Scientific Study Group members, working with the Project Management Group, have begun the process of getting local approvals for their centres. You can access the registry here: https://globe-reg.net/registry/ If you have any questions please email email@example.com.
Brad Miller (L) and Lars Sävendahl (R) from the GH SSG pictured next to the poster at ESPE Brad Miller presented a poster titled: The Growth Hormone Study Module For Paediatric Growth Hormone Deficiency‐ In The Global Registry For Novel Therapies In Rare Bone & Endocrine Conditions (GloBE‐Reg) on behalf of the GloBE-Reg Growth Hormone… Continue reading GloBE-Reg Poster at ESPE
We successfully held our first face-to-face joint meeting in Rome and were pleased to have representatives from the Steering Committee, GH Scientific Study Group, Data Access Committee and Industry Partners in attendance. GloBE-Reg Joint Meeting in Bambino Gesù Hospital in Rome
We were pleased to have our first international outing of GloBE-Reg at ENDO 2022 in Atlanta. Next stop: Rome! #ESPE2022
Registration is now OPEN to attend the #ESPE2022 meeting! Rich in content, we are hosting delegates from around the world who want to present and discuss their latest findings with you! Find out how you can join us in Rome this Autumn. http://ow.ly/BeKP50Jy0KW
The ESPE Education and Training Committee is delighted to announce the fifth webinar in their ESPE Connect webinar series. About this event The webinars will offer high-quality scientific and educational content from our world-leading paediatric endocrinologists. ESPE Connect will present the latest developments covering all areas of paediatric endocrinology that you can view whilst it’s… Continue reading Book your place: ESPE Connect Webinar Series – Long Acting Growth Hormone
Taking place on Thursday, 16 June 2022 from 13.00 to 14.00 CEST, and organised by Scientific Seminars Foundation. In the Final Program, you will find detailed information about Overview, target audience, learning objectives, CME accreditation, simultaneous translations, etc. The faculty is composed by the following world-renowned experts: Prof. Margaret Boguszewski, Federal University of Parana’, Curitiba,… Continue reading Book your place on the Live Webinar, “The Role of rhGH Therapy in Turner Syndrome (TS): Growth and Quality of Life”
GloBE-Reg: Global Registry For Novel Therapies In Rare Bone & Endocrine Conditions GloBE-Reg is a new international registry project that has been launched by the Office for Rare Conditions at the University of Glasgow. The project believes that post regulatory approval studies may be more effectively performed through registry-based studies that collect relevant real-world data… Continue reading Press Release