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Global Registry For Novel Therapies In Bone & Endocrine Conditions

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Ethics Amendments

Amendment 03/03/2026 (REC Ref AM07)

  • Data Dictionaries (Therapy stopped v1, PWS v1 and SAFE-survivors v1)
  • Data Sharing Agreement (Data Disclosers v1.2)
  • DCCs list (March 2026)

Amendment 11 December 2023 (REC Ref AM03)

  • Patient Information Sheets v2
  • Protocol for Managment of Database v2
  • Data Dictionary 2023.11
  • Data Sharing Agreement (Data Disclosers v1)
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