Expert working groups are condition or drug specific working groups that are administratively supported by GloBE-Reg and last for a maximum duration of 24 months. Their possible activities are listed below .
- Advise GloBE-Reg on the creation of a minimum dataset for a condition or diagnosis specific module for specific class or group of drug/s
- Act as a liaison between the international endocrine community and GloBE-Reg
- Act as a liaison between industry and GloBE-Reg
- Ensure optimal patient involvement and engagement in the project
- Contribute to the activities of the GloBE-Reg Registry
- Initiate the development of future studies using the GloBE-Reg platform
- Initiate the development of other EWGs using the GloBE-Reg platform
- Provide input into the EWG section on GloBE-Reg website
- Provide input into the EWG section on the GloBE-Reg newsletter
The full remit of an EWG is also available
Past and present EWGs
- Childhood GHD – 2022 – 2024
- Adulthood GHD – 2023 – 2025
- Noonan Syndrome – 2023 – 2025
If you are interested in joining any of these groups or would like to find out more about creating a new EWG, please contact the GloBE-Reg team.
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