Steering Committee

The GloBE-Reg Steering Committee was formed in 2022.

GloBE-Reg Steering Committee Remit

Members are nominated by professional societies, with experience in the field of registries and serve fixed tenures. In addition funders also have representation on the Steering Committee.

Steering CommitteeAffiliationPlace
Faisal AhmedProject Lead Office for Rare ConditionsGlasgow, UK
Tânia BachegaSLEPSao Paulo, Brazil
Maria CraigAPEGSydney, Australia
Natasha Appelman-DijkstraEndo-ERNLeiden, Netherlands
Abdelhadi HabebASPEDAl-Madinah, Saudi Arabia
Reiko HorikawaJSPETokyo, Japan
Yazid JalaludinAPPESKuala Lumpur, Malaysia
Agnès LinglartESPEParis, France
Xiaoping LuoCSPEWuhan, China
Ryan MillerPESBaltimore, USA
Yuen-Sum ManNovo NordiskNA
Supported by the Project Management Group

Members of the Steering Committee can access a private area here.