The GloBE-Reg Patient Advisory Group (G-PAG) consists of patient representatives who have knowledge and experience of the platform and the drugs that are being studied in GloBE-Reg. Members will also represent the interests of patients and rotate through the Steering Committee, Data Access Committee and the Scientific Activities Committees and report to the other members of their respective committees at the PAG. We are always looking for more people to join this group so please contact info@globe-reg.net if you would like to join.
GloBE-Reg Patient Advisory Group Remit
Ines Alves | Steering Committee | Portugal | 2023 | 2026 |
Deno Andrews | Adulthood GHD EWG | USA | 2023 | 2027 |
Jenny Child | Data Access Committee | UK | 2023 | 2026 |
Ashley Gilmer | ICOSEP | USA | 2024 | 2027 |
Jamie Harvey | ICOSEP | USA | 2022 | 2025 |
Alyse Hubbard | Noonan Syndrome EWG | USA | 2023 | 2026 |
Sonia Tamponi | Noonan Syndrome EWG | Italy | 2023 | 2026 |
Diana Vitali | Scientific Activities Committee& Adulthood GHD EWG | Italy | 2022 | 2025 |
Pierre Yger | Noonan Syndrome EWG | France | 2023 | 2026 |
Last Modified