Patient Advisory Group

The GloBE-Reg Patient Advisory Group (G-PAG) consists of patient representatives who have knowledge and experience of the platform and the drugs that are being studied in GloBE-Reg. Members will also represent the interests of patients and rotate through the Steering Committee, Data Access Committee and the Scientific Activities Committees and report to the other members of their respective committees at the PAG. We are always looking for more people to join this group so please contact info@globe-reg.net if you would like to join.

GloBE-Reg Patient Advisory Group Remit

Ines AlvesSteering CommitteePortugal20232026
Deno Andrews
Adulthood GHD EWG
USA20232027
Jenny ChildData Access CommitteeUK20232026
Ashley GilmerICOSEPUSA20242027
Jamie HarveyICOSEPUSA20222025
Alyse HubbardNoonan Syndrome EWGUSA20232026
Sonia TamponiNoonan Syndrome EWGItaly20232026
Diana VitaliScientific Activities Committee&
Adulthood GHD EWG
Italy20222025
Pierre YgerNoonan Syndrome EWGFrance20232026

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