Patient Advisory Group

The GloBE-Reg Patient Advisory Group (PAG) consists of patient representatives with knowledge and experience of the platform and the drugs that are studied in GloBE-Reg. Members represent the interests of patients and rotate through the key Committees and Expert Working Groups.

Patient Advisory Group Remit

NameRepresentationTenure startTenure End
Ines AlvesSteering Committee, Patient Reported OutcomePortugal20232027
Ashley GilmerICOSEP, Data Access Committee, Patient Reported OutcomeUSA20242028
Theresa StrongPrader Willi SyndromeUSA20252028
Diana VitaliData Access Committee, Scientific Activities Committee, Adulthood GHD, Patient Reported OutcomeItaly20222026
Amrat KhoranaIPWSOUK20262029

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