Home
GloBE-Reg is an international registry project whose stakeholders include patients, professionals, scientific organisations and industry.
Its mission includes:-
– Supporting studies that focus on effectiveness and long-term safety through routine collection of real-world data on specific drugs
– Acting as a sustainable registry that can support these activities for several specific drugs and indications
– Building an inclusive and open community that maximizes the use of data
– Working in collaboration with other registries to improve global knowledge on drug effectiveness and long-term safety
Get in Touch
If you would like to find out more please contact info@globe-reg.net
You can also follow us on X: https://twitter.com/GloBE_Reg
GloBE-Reg Latest News
Noonan Syndrome module now live!
Condition-specific Case Report Forms will capture information on all Noonan Syndrome patients in the registry. A big thank you to the NS Expert Working Group for developing the module and the registry user volunteers for providing feedback. For further information on the NS EWG visit https://globe-reg.net/noonan-syndrome/
Drop-ins
Do come to one of our Drop-ins on Tuesday 16th April (4-5pm) https://globe-reg.net/drop-in-sessions/
Newsletter
The Spring 2024 GloBE-Reg newsletter is now out! https://preview.mailerlite.io/emails/webview/8333/116324394810214070
Last Modified