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GloBE-Reg is an international registry project whose stakeholders include patients, professionals, scientific organisations and industry.
Its mission includes:-
– Supporting studies that focus on effectiveness and long-term safety through routine collection of real-world data on specific drugs
– Acting as a sustainable registry that can support these activities for several drugs and indications
– Building an inclusive, open and collaborative community that maximizes the use of data
Get in Touch
If you would like to find out more please contact info@globe-reg.net
GloBE-Reg Latest News
Next Drop-in Session
Our next on-line drop-in is on Friday 2nd October (0900-1000 UK time). A GloBE-Reg Data Entry Workshop will also be held during the session. Join Teams meeting: https://teams.microsoft.com/meet/366305713999431?p=nOzaXIMCOvTL8RHjvI
Newsletter
The Autumn 2026 GloBE-Reg Newsletter is now published! https://sway.cloud.microsoft/0Fll9EL3OHJoIPRW?ref=Link
Meet the GloBE-Reg team at ESPE 2026!
Visit us at the Office for Rare Conditions – Registries booth (#32) and join our Registries Drop-in Session on 9 September, 13:00–14:00 to find out more and ask any questions about GloBE-Reg. https://globe-reg.net/orc-registries-espe/
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