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GloBE-Reg is an international registry project. The stakeholders of this project include patients, professionals, scientific organisations and industry.
Its mission includes:-
– Supporting the development of specific studies with a focus on effectiveness and long-term safety through routine collection of real-world data on specific classes of drugs e.g. fulfilment of post-approval regulatory requests
– Acting as a longitudinal registry study for effectiveness and long-term safety monitoring for specific drugs where a registry study does not exist
– Working in collaboration with other registries to maximize global knowledge on drug effectiveness and long-term safety
GloBE-Reg Latest News
Interest In GloBE-Reg Rises
Since the launch of the project and the registry going live in Q4, 2022, the number of visits to the website has seen a steady increase. Looking forward to the February drop-in session!
GloBE-Reg Registry now Live
The registry went live in October 2022 and is ready for use. The Growth Hormone Scientific Study Group members, working with the Project Management Group, have begun the process of getting local approvals for their centres. You can access the registry here: https://globe-reg.net/registry/ If you have any questions please email info@globe-reg.net.
GloBE-Reg Poster at ESPE
Brad Miller presented a poster titled: The Growth Hormone Study Module For Paediatric Growth Hormone Deficiency‐ In The Global Registry For Novel Therapies In Rare Bone & Endocrine Conditions (GloBE‐Reg) on behalf of the GloBE-Reg Growth Hormone Scientific Study Group at the ESPE conference in Rome. To view the pdf of the poster click here.…
GloBE-Reg is supported by GenSci, Novo Nordisk, NHS Research Scotland and the University of Glasgow
Get in Touch
If you would like to find out more please contact info@globe-reg.net.
You can also follow us on Twitter: https://twitter.com/GloBE_Reg.
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