Obtaining Registry Data for Research

Searching the Registry for data at centres other than the user’s own centre is only possible by the Registry Team.

To obtain data from the Registry, prospective investigators should have a look at the GloBE-Reg Management Protocol and the Publication Plan and complete the Research Request Form and the Data Sharing Agreement. They should also look at the Data Dictionary and select and briefly justify the data fields that they would like to collect on the Data Justification Form. All the paperwork is also accessible through the links below. However, before completing these forms, please contact the Registry Team which has extensive experience in supporting investigators in maximising the research potential of the data in the Registry. The team can provide advice on the study process and design and liaise with Registry users. All activities including data provision will incur a fee and this will depend on the nature of the required support and prospective investigators are asked to discuss this with the team at the start of the submission process.

Deadlines for Research Requests. Research requests can be submitted at any time

Once submitted the Research Request Form and Data Justification Form are sent to the Data Access Committee for approval. Following submission, it takes about 6-8 weeks for the investigators to hear of the final outcome of their request and a further 6-8 weeks to launch the study and start obtaining the data. Investigators should plan their studies around these timelines.

Research Request Form

Data Sharing Agreement

Data Dictionary & Justification of Data Request

GloBE-Reg Management Protocol (Data Access Policy)