Individuals who wish to access their records in the Registry should provide their hospital doctor with an email address.
Once the record is added, the doctor can send an invitation by selecting the ‘Patient Access’ tab. There, they can write a message and enter the individual’s email address. By clicking ‘Send Access Invitation’, an email is automatically sent with a link to create an account.
Through this account, the individual can view their data in read-only mode, update consent preferences, or request data deletion.
