Do come to one of our Drop-ins on Friday the 2nd June https://globe-reg.net/drop-in-sessions/
Author: GloBE-Reg Admin
Patient Infosheets – multiple languages
With the help of the GloBE-Reg community, we are building a repository of the GloBE-Reg Patient Information Sheets and Consent Form in multiple languages (https://globe-reg.net/information-sheets/). Contact us (https://globe-reg.net/contact/) if you would like to help.
Somapacitan Study (REAL 10)
Sompacitan Study (REAL10) launches on GloBE-Reg. For further details of the study visit : https://globe-reg.net/somapacitan-study/
Collaborative Centre Set-up grants
Congratulations to the first recipients of the GloBE-Reg Collaborative Centre Set-up grants https://globe-reg.net/collaborative-centre-grant-awardees/… Applications are considered quarterly.
Interest In GloBE-Reg Rises
Since the launch of the project and the registry going live in Q4, 2022, the number of visits to the website has seen a steady increase. Looking forward to the February drop-in session!
GloBE-Reg Registry now Live
The registry went live in October 2022 and is ready for use. The Growth Hormone Scientific Study Group members, working with the Project Management Group, have begun the process of getting local approvals for their centres. You can access the registry here: https://globe-reg.net/registry/ If you have any questions please email info@globe-reg.net.
GloBE-Reg Poster at ESPE
Brad Miller (L) and Lars Sävendahl (R) from the GH SSG pictured next to the poster at ESPE Brad Miller presented a poster titled: The Growth Hormone Study Module For Paediatric Growth Hormone Deficiency‐ In The Global Registry For Novel Therapies In Rare Bone & Endocrine Conditions (GloBE‐Reg) on behalf of the GloBE-Reg Growth Hormone… Continue reading GloBE-Reg Poster at ESPE
First GloBE-Reg Joint Meeting in Rome 14/09/2022
We successfully held our first face-to-face joint meeting in Rome and were pleased to have representatives from the Steering Committee, GH Scientific Study Group, Data Access Committee and Industry Partners in attendance. GloBE-Reg Joint Meeting in Bambino Gesù Hospital in Rome
GloBE-Reg at ESPE 2022
First International outing of GloBE-Reg @ENDO 2022
We were pleased to have our first international outing of GloBE-Reg at ENDO 2022 in Atlanta. Next stop: Rome! #ESPE2022
globe-reg.net 