Author: GloBE-Reg Admin

GloBE-Reg is delighted to announce that Ashley Gilmer from @ICOSEPorg has joined the @globereg patient advisory group https://globe-reg.net/patient-advisory-group/

New study Real-world IGF-1 variation in Growth Hormone Therapy in children (RIGHT) launches on the GloBE-Reg platform! To find out more visit: https://globe-reg.net/igf-1-childhood-gh-therapy-study/

As we approach the end of 2023, we thank you for your continued support and best wishes for 2024’ https://www.youtube.com/watch?v=o5tnsiJzWt0

The GloBE-Reg Centre Grant application deadline is 31st December - for details on how to apply visit https://globe-reg.net/globe-reg-collaborative-centre-grants/

The Expert Working Group on Adulthood GHD has started working on developing a minimum dataset for monitoring safety and effectiveness of rhGH therapy. To find out more, visit https://globe-reg.net/adulthood-ghd/

Updated Version 2023.10 of Registry and Data Dictionary now available https://globe-reg.net/data-elements/

The Expert Working Group on Noonan Syndrome has started working on developing a minimum dataset for monitoring the safety and effectiveness of rhGH therapy. To find out more, visit https://globe-reg.net/noonan-syndrome/

A big welcome to Sanhita Koley, Data Scientist for the Office for Rare Conditions Registries

Good to see that the Registry is now being populated with cases on long-acting rhGH therapy.

As the GloBE-Reg Registry reaches its first anniversary, good to see that so many centres are actively using the platform. For more information visit https://globe-reg.net/activity-report/.