Author: GloBE-Reg Admin

As we approach the end of 2023, we thank you for your continued support and best wishes for 2024’ https://www.youtube.com/watch?v=o5tnsiJzWt0

The GloBE-Reg Centre Grant application deadline is 31st December - for details on how to apply visit https://globe-reg.net/globe-reg-collaborative-centre-grants/

The Expert Working Group on Adulthood GHD has started working on developing a minimum dataset for monitoring safety and effectiveness of rhGH therapy. To find out more, visit https://globe-reg.net/adulthood-ghd/

Updated Version 2023.10 of Registry and Data Dictionary now available https://globe-reg.net/data-elements/

The Expert Working Group on Noonan Syndrome has started working on developing a minimum dataset for monitoring the safety and effectiveness of rhGH therapy. To find out more, visit https://globe-reg.net/noonan-syndrome/

A big welcome to Sanhita Koley, Data Scientist for the Office for Rare Conditions Registries

Good to see that the Registry is now being populated with cases on long-acting rhGH therapy.

As the GloBE-Reg Registry reaches its first anniversary, good to see that so many centres are actively using the platform. For more information visit https://globe-reg.net/activity-report/.

The Autumn newsletter is published at https://preview.mailerlite.io/preview/8333/emails/98408628292158709 do have a look.

Development of A Minimum Dataset for the Monitoring of Recombinant Human Growth Hormone (rhGH) Therapy Use in Children with Growth Hormone Deficiency (GHD) – A @GloBE_Reg Initiative! https://karger.com/hrp/article/doi/10.1159/000533763/862926/Development-of-A-Minimum-Dataset-for-the