Latest Modifications

Version NumberCategoryItemDescription
2025.Q3FunctionalityPROA new validated PRO of GHD-CIM is available in the registry.
2025.Q3FunctionalityCRFsCondition specific modules for PWS and Cancer Survivor are live.
2025.Q3DictionaryBulk Upload TemplatesThe most up-to-date Bulk Upload Templates for Core and Core Data History can now be downloaded live from the Registry via the Data Dictionary menu item
2025.Q2FunctionalityBulk UploadThe Core Data History session can be bulk uploaded directly into the registry, allowing multiple records to be added at once rather than entering them individually.
2025.Q1FunctionalityPatient-level Admin queriesIn the Edit To Do box, GloBE-Reg admin can place patient-level queries for the Responsible Clinician to address.  A monthly e-mail will be sent with the list of IDs that have Admin queries.  The Responsible Clinican can address the issue and then clear the Admin notes.
2025.Q1DictionaryData DictionaryThe Data Dictionary now has functionality that allows filtering of condition- and drug- specific modules
2024.Q4HistoryCore Data HistoryThis feature creates appropriate condition- or drug-specific Case Report Forms (CRF) relating to a retrospective period. Retrospective visit CRFs can only be captured if a corresponding Core Data History period has been created.
2024.Q4FunctionalityAutofill DatesMost assessments dates now default to the Visit date. An autofill function is available to automatically complete the dates within a section based on the first date provided. This feature is available for most biochemical dates.
2024.Q4DictionaryData DictionaryThe most up-to-date Data Dictionary, Conditions Dictionary, and Data Justification Form can now be downloaded live from the Registry via the Data Dictionary menu item.
2024.Q4FunctionalityCopy and Create CRFsThe Copy and Create CRF function allows a user to migrate the data from an old version to the newest version. Users must carefully check the accuracy of the copied data and if necessary update missing values manually. Some forms cannot be copied due to differences between sections; in such cases, the CRF should be completed from scratch.

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