Category: Uncategorized

New study Real-world IGF-1 variation in Growth Hormone Therapy in children (RIGHT) launches on the GloBE-Reg platform! To find out more visit: https://globe-reg.net/igf-1-childhood-gh-therapy-study/

As we approach the end of 2023, we thank you for your continued support and best wishes for 2024’ https://www.youtube.com/watch?v=o5tnsiJzWt0

The GloBE-Reg Centre Grant application deadline is 31st December - for details on how to apply visit https://globe-reg.net/globe-reg-collaborative-centre-grants/

The Expert Working Group on Adulthood GHD has started working on developing a minimum dataset for monitoring safety and effectiveness of rhGH therapy. To find out more, visit https://globe-reg.net/adulthood-ghd/

Do come to one of our Drop-ins on Friday 1st December https://globe-reg.net/drop-in-sessions/

Do come to one of our Drop-ins on Tuesday 21st November https://globe-reg.net/drop-in-sessions/

Updated Version 2023.10 of Registry and Data Dictionary now available https://globe-reg.net/data-elements/

The Expert Working Group on Noonan Syndrome has started working on developing a minimum dataset for monitoring the safety and effectiveness of rhGH therapy. To find out more, visit https://globe-reg.net/noonan-syndrome/

A big welcome to Sanhita Koley, Data Scientist for the Office for Rare Conditions Registries

Do come to one of our Drop-ins on Friday 3rd November https://globe-reg.net/drop-in-sessions/