News

Good to see that the Registry is now being populated with cases on long-acting rhGH therapy.

As the GloBE-Reg Registry reaches its first anniversary, good to see that so many centres are actively using the platform. For more information visit https://globe-reg.net/activity-report/.

The Autumn newsletter is published at https://preview.mailerlite.io/preview/8333/emails/98408628292158709 do have a look.

Development of A Minimum Dataset for the Monitoring of Recombinant Human Growth Hormone (rhGH) Therapy Use in Children with Growth Hormone Deficiency (GHD) – A @GloBE_Reg Initiative! https://karger.com/hrp/article/doi/10.1159/000533763/862926/Development-of-A-Minimum-Dataset-for-the

If you are interested to find out more about Globe-Reg, please come to our meeting next week on Saturday 23rd September between 1030-1130 in the Central America room at @eurospe

GloBE-Reg Centre Support Grant applications are invited for Q3 - deadline 30th September - for details on how to apply visit https://globe-reg.net/globe-reg-collaborative-centre-grants/

Congratulations to the recipients of the GloBE-Reg Collaborative CentreSet-up grants https://globe-reg.net/collaborative-centre-grant-awardees/ Applications are considered quarterly

Do come to one of our Drop-ins on Friday 1st September https://globe-reg.net/drop-in-sessions/

We are looking for a Data Scientist to join our international Rare Diseases registries team! For further info, contact directly or go to this link