Searching the Registry for data at centres other than the user’s own centre is only possible by the Project Management Group (PMG).
To obtain data from other centres, prospective investigators need to apply to the Data Access Committee by completing the Research Request Form. In the Data Justification Form, please select and briefly justify the data fields that need to be collected.
Please look at the following documents but before completing the forms, please contact the Project Management Group, which has extensive experience in supporting investigators.
- Research Request Form
- Data Sharing Agreement
- Data Justification Form
- GloBE-Reg Management Protocol
- Publication Plan
It is mandatory to discuss your project with the PMG in detail at least one month prior to the submission deadline.
Deadlines for Research Request
Research requests can be submitted at any time but will only be reviewed by the Data Access Committee after the following deadlines every year:
31st March, 30th June, 30th September and 31st December
Process After Submission
Once the submitted Research Request Form and Data Justification Form are sent to the Data Access Committee (DAC) for approval. The review process typically takes about 3 weeks, during which the DAC will evaluate the request and provide feedback through the Data Access Committee Feedback Form
Following submission, it takes about 4-6 weeks for the investigators to hear of the outcome of their request. Following the feedback of the DAC, the investigators may need to make some changes to the original application and provide a response to the comments of the DAC and a further 2-4 weeks to launch the study.
Process After Approval
The PMG will work with the investigators to launch the study by developing a summary of the study that will be posted on the website and provided to reporting centres with eligible cases. Reporting centres will then decide whether they would like to participate in the study. If they do agree to participate, they will be provided instructions on timelines. Data tranches are usually performed in May and November every year and investigators should plan their studies and outputs around these timelines. The PMG will arrange regular meetings with the investigators to discuss progress and the investigators will submit an annual progress report to the DAC.
Amendment to protocol already approved by DAC. An amendment to an approved study can be undertaken by submitting a letter to the PMG. Extension of the duration of the study, extension of the geographical region or addition to the core group of investigators/applicants are considered a minor amendment. However, any other amendments may require the input of the DAC.
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