Patient Reported Outcomes

This new EWG, cochaired by Brad Miller, Minneapolis and Faisal Ahmed, Glasgow has the aim of reviewing existing PROs and developing guidance for their use in the field of rhGH therapy. The first meeting of this group was held in March 2025. The EWG also has representation from industry and patient associations.

All EWGs have a Remit and a maximum duration of 2 years.


Current Activities

  1. Review existing patient-reported outcome (PRO) questionnaires in the field of rhGH therapy
  2. Develop guidance for the use of PROs in the field of rhGH therapy

Members:

Brad MillerMinneapolis, USA
Faisal AhmedGlasgow, UK
Salma AliGlasgow, UK
Malika AlimussinaGlasgow, UK
Ines AlvesANDO, Portugal
Nienke BiermaszLeiden, Netherlands
Ching ChenGlasgow, UK
Ashley GilmerICOSEP, USA
Eleanor GrieveGlasgow, UK
Michael HojbyNovo Nordisk, Denmark
Maria Koltowska-HaggstromWroclaw, Poland
Mohamad MaghnieGenoa, Italy
Aristides ManiatisCentennial, USA
Julia QuitmannHamburg, Germany
Caterina TedescoGenoa, Italy

Supported by Project Management Group

Declarations of Interests Table

Members of the PRO EWG can access a private area here

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