This Expert Working Group (EWG) was formed in late 2025. In addition to testing and using the GloBE-Reg platform and stimulating the development of studies, the EWG will also develop a recommendation for a minimum dataset that should be collected for assessing the safety and effectiveness of rhGH therapy in children with short stature and who were Small for Gestational Age (SGA).
All EWGs have a Remit and a maximum duration of 2 years.
Current Activities
- Development of the minimum dataset for monitoring safety and effectiveness of rhGH in SGA
- Creation of SGA module in the registry
Members:
| Jan Lebl | Prague, Czech Rep |
| Shenali Amaratunga | Prague, Czech Rep |
| Gerhard Binder | Tubingen, Germany |
| Jiajia Chen | Beijing, China |
| Peter Clayton | Manchester, UK |
| Wayne Cutfield | Auckland, New Zealand |
| Cheri Deal | Montreal, Canada |
| Olcay Evliyaoglu | Istanbul, Turkey |
| Mitchell Geffner | Los Angeles, USA |
| Rieko Horikawa | Tokyo, Japan |
| Lourdes Ibanez | Barcelona, Spain |
| Violeta Iotova | Varna, Bulgaria |
| Alexander Jorge | Sao Paulo, Brazil |
| Anders Juul | Copenhagen, Denmark |
| Irène Netchine | Paris, France |
| Alberto Pietropoli | Novo Nordisk |
| Sona Samvelyan | Yerevan, Armenia |
| Jananie Suntharesan | Kandy, Sri Lanka |
| Lloyd Tack | Ghent, Belgium |
| Michael Wajnrajch | Pfizer |
| Faisal Ahmed | GloBE-Reg Project Management |
| Malika Alimussina | GloBE-Reg Project Management |
| Ching Chen | GloBE-Reg Project Management |
Declarations of Interests Table
Members of the SGA EWG can access a private area here.
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