Since the launch of the project and the registry going live in Q4, 2022, the number of visits to the website has seen a steady increase. Looking forward to the February drop-in session!
Category: Project News
GloBE-Reg Registry now Live
The registry went live in October 2022 and is ready for use. The Growth Hormone Scientific Study Group members, working with the Project Management Group, have begun the process of getting local approvals for their centres. You can access the registry here: https://globe-reg.net/registry/ If you have any questions please email info@globe-reg.net.
GloBE-Reg Poster at ESPE
Brad Miller (L) and Lars Sävendahl (R) from the GH SSG pictured next to the poster at ESPE Brad Miller presented a poster titled: The Growth Hormone Study Module For Paediatric Growth Hormone Deficiency‐ In The Global Registry For Novel Therapies In Rare Bone & Endocrine Conditions (GloBE‐Reg) on behalf of the GloBE-Reg Growth Hormone… Continue reading GloBE-Reg Poster at ESPE
First GloBE-Reg Joint Meeting in Rome 14/09/2022
We successfully held our first face-to-face joint meeting in Rome and were pleased to have representatives from the Steering Committee, GH Scientific Study Group, Data Access Committee and Industry Partners in attendance. GloBE-Reg Joint Meeting in Bambino Gesù Hospital in Rome
Press Release
GloBE-Reg: Global Registry For Novel Therapies In Rare Bone & Endocrine Conditions GloBE-Reg is a new international registry project that has been launched by the Office for Rare Conditions at the University of Glasgow. The project believes that post regulatory approval studies may be more effectively performed through registry-based studies that collect relevant real-world data… Continue reading Press Release
Scientific Study Group Development Fund
We are pleased to announce that our Scientific Study Group Development Fund is now open for applications. https://globe-reg.net/scientific-study-group-development-fund/
globe-reg.net 